The Clinical Utility of Utility Assessment
Harold Bursztajn, M.D., and Robert M. Hamm, Ph.D.
From the Program in Psychiatry and the Law, Massachusetts Mental Health
Center, Boston, Massachusetts, and the Center for Research on Judgment
and Policy, University of Colorado, Boulder, Colorado. Dr. Bursztajn’s
participation in this work was supported in part by NIMH Grant #TOTMH64603.
Dr. Hamm was a research fellow in the Division of Primary Care and
Family Medicine, Harvard Medical School.
An earlier version of this paper was presented to the First Annual Meeting
of the Society for Medical Decision Making, Cincinnati, Ohio, September
12, 1979. Please address requests for reprints to Dr. Bursztajn,
Program in Psychiatry and the Law, Massachusetts Mental Health Center,
74 Fenwood Road, Boston, Massachusetts 02115, USA.
Abstract
The usefulness of utility assessment as a method for revealing individual
patients’ desires is limited by two methodological problems. Different
utility assessment methods can yield inconsistent results, both within
a single clinical context and in different contexts; and the methods
may not reflect universal rules that a patient may wish to abide
by. To make utility assessment useful to the clinician, future research
needs to address these problems in the clinical context. (Med Decis
Making 2:161-165, 1982)
Article
A variety of current trends express the need for greater patient participation
in decision making. An increasingly influential response to this
need is to use utility assessment procedures to measure individual
patients’ preferences for the outcomes of possible treatments. For
example, McNeil, Weichselbaum, and Pauker [1] used
a utility assessment procedure to measure individual patients’ preferences
for duration of life, indicating which of two treatments for lung
cancer would be preferred -radiation or surgery. This is an important
demonstration of the use of utility theory in medical decision making.
However, before widespread use of such a utility measure as a means
for ascertaining patient values would be justified, further questions
about its reliability and validity need to be answered. The sorts
of questions that one must ask can be clarified by examining the
version of the lottery method of subjective utility assessment [2] that
is commonly used, as in the case of the paper by McNeil et al. This
method produces a &dquo;utility curve,&dquo; showing the relation
between the amount of life remaining and the subjective value of
that amount of life. We ask, first, whether it is wise to rely on
only one such method to measure utility?
Poulton [3] has shown that when asking for subjective
judgments of sensory magnitudes, the particular details of the methods
can have major effects on the subjective relation revealed. For example,
when judging the loudness of sounds, asking for judgments of stimuli
near some limit, such as the threshold of hearing, may give a different
overall relation than if such quiet stimuli are not considered, because
the subjective impression of those stimuli is different near the threshold.
Looking for analogous effects in the assessment of utility, we wonder
whether a lottery method that uses a 50% chance of dying in one week
as its zero point might not yield utility curves less risk averse than
one that anchors on a 50% chance of "dying immediately" [1].
We note that in a later work McNeil, Weichselbaum, and Pauker [4] have
sought to avoid this problem by offering 50-50 gambles between survival
for one’s full life expectancy and death in a few months. Another method
would be to partition the range of outcomes into subranges that the patient
finds it natural to think about, assess the utility function over each
range, and then combine the functions into one function for the whole
range, in the manner of Krzysztofowicz and Duckstein [5] and
Farquhar and Fishburn [6].
It has been shown that it makes a difference whether people indicate
preference by taking a choice between two alternatives (as do McNeil,
Weichselbaum, and Pauker’s patients) or by directly naming numbers
to represent utility. The systematic inconsistencies found between
the two methods [7, 8] give us
reason to consider very carefully what methods we want to use. Recent
work showing how different utility scales are produced by different
lottery method procedures [9-12] supports this recommendation.
A second major problem is that it is not easy to bring all reasonably
relevant considerations into discussions with patients. How may this
be done in such a way as to guarantee the validity of the utilities
of remaining life measured by a method such as a 50-50 lottery? First,
we must expect that fear and denial [13] would
be manifest in patients with severe illness of recent onset. These
could make patients either more or less risk averse than they might
be under other conditions. Such patients might not think of certain
important considerations such as the impact that their health care
choices might have on the well-being of others, including their families,
loved ones, and the community as a whole. They might give a place
of specious prominence to other, less important considerations. For
example, one’s self-interest may come to be far more narrowly conceived,
excluding altruism and concern for others, as well as being given
a greater emphasis than it had prior to the procedure [14].
These effects can happen with either the lottery or the direct assessment
method. To counter these, a method for clinical use should have some
of the characteristics of a well-done psychiatric interview that,
by providing a supportive relationship, seeks to free the patient
from overwhelming fear and aloneness in the face of illness. The
hope would be that the patient might thereby have freer access to
those values which can be most easily expressed when one is secure
enough to function at one’s most mature level [15, 16].
There are also certain preferences some patients have which may be quite
difficult to express with these utility assessment methods. A patient
may think that the decision in his or her case should be made according
to universal considerations, such as those expressed in religion
and philosophy, rather than according to the chaos of one’s momentary
impulses. If one wants one’s behavior to be governed by universal
rules, it may not be immediately clear how to express this using
the lottery method. Suppose that a patient may have a notion that
it is good to die quickly, cleanly, and with the dignity that is
often attributed to operative death. It is not obvious to an untutored
patient (or indeed to us) how to express these values in terms of
the lottery method, when its only parameters are time of life left.
Though it may be possible to express this universal rule through
the lottery method, can we expect the patient to be able to do this
well? Perhaps training in using the lottery method to express principles
would solve this problem, or again a special procedure modeled on
the psychiatric interview could be undertaken to elicit the patients’
principles and explore how these would be reflected in the utility
assessment method.
It might well be possible to use the lottery method to express the preferences
embodied in most universal rules. However, there are some universal
rules that could militate against the use of the 50-50 lottery method
itself. A rule against suicide, for example, might make it difficult
for a patient to consider taking a gamble with a 50% chance of immediate
death. This bias against a particular aspect of one of the alternatives
would make the patient appear more risk averse than another method
might reveal. Special procedures are needed to elicit the universal
rules that patients may wish to use, so as to avoid the automatic
application of assessment methods in a manner that undermines the
results and defeats the purpose of the utility assessment.
In order for clinicians to be able to apply utility theory by using the
results of work such as the study by McNeil et al. [1],
it is necessary that the methods be embedded in a repertoire which
offers a variety of methods and justifications for their selection.
Why is one utility assessment procedure more appropriate than another?
Justifications for selecting a particular method would depend on
evidence that other available methods will not yield substantially
different results, or if they do, there must be some basis for preferring
either the method or the pattern of results that the chosen procedure
produces.
The research necessary to create such a repertoire would involve comparing
the results of the different methods in each of a variety of situations.
The results of this comparison, embodied in the rules of thumb for
selecting from the repertoire, could alert the user to possible pitfalls
and systematic reversals of preference engendered by the use of particular
methods in particular situations.
As a final caveat, a repertoire of values assessment methods would be
incomplete if, when using experimental comparisons to construct it,
the
"method of no method," i.e., the clinician’s intuitive approach,
were not considered. The clinician’s approach offers a valuable comparison,
not just as a "control" to see whether these systematic utility
assessment methods are any better than "no method at all," but
because it would not have the systematic errors that can sometimes result
from using a particular elicitation procedure. Such a critical balance
between the systematic and the intuitive approaches to assessment of
patients’ values is needed. "Professional students of society ...
often make large errors of judgment because of an overly analytical and
doctrinaire application of knowledge. On the other hand, an extended
use of intuitive thought without attendant checks from analysis may be
equally unsatisfactory. Errors resulting from inappropriate use of intuitive
thought are not apt to be catastrophic, however, as errors resulting
from analytical thought are apt to be" [17, p
71].
The currently available methods of utility assessment are neither consistent
nor perfect, and there are good reasons to believe that they cannot
be made so [18, 19]. Though useful
as an adjunct to other, more traditional methods for value elicitation
and shared decision making, they are not a substitute. However, offering
to the clinician and patient a variety of methods that arrive at
different choices is by no means a tragic flaw. If used critically,
these can be an aid to living with uncertainty and sharing responsibility
in clinical practice.
In the long run, to evaluate utility assessment methods for use in clinical
practice we must keep in mind the impact that any proposed method
has upon the doctor-patient relationship [20].
A method which enhances the trust and security in such a relationship
should be preferred not just because trust between doctor and patient
is good in itself, but also because it allows the ill patient to
express preferences that are based on his or her most mature values.
Acknowledgment
The authors wish to thank Drs. Barbara McNeil, Stephen Pauker, and other
members of the Society for Medical Decision Making, whose comments
on the initial presentation of this paper in 1979 were helpful in
subsequent revision. We should also like to thank Drs. Thomas Gutheil
and Robert Lawrence for providing the hospitable environment in which
the final revision took place.
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